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phoenix-vanguard:

ghostsfacer:

Sorry but I will reblog this every time I see it because it is just too accurate not to.


This is my page….😂😂😂😂!! Sorry not sorry…😉😎🍻
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My Parents are Dead and My Sister is Disabled

congalineofdurin:

cockismybusiness:

team—wolverine:

therealbarbielifts:

eisforedna:

On May 28th, my sister, Edna, turned 31.

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Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

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Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

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That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

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ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

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May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

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Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

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Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

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YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

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Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

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For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

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But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

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She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

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So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

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Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

(Source: , via thesoulectedone)

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bensbardom:

queerembraces:

David Wojnarowicz wore this jacket in 1988, just 4 years before he’d ultimately die from AIDS. Sadly, just a few years ago some of his artistic work was censored at the Smithsonian. People in power are still content to try and erase his history and the continued struggles of people with AIDS

everyone everywhere please please please reblog this important artist. 
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cheezburgah:

even if you don’t live in canada, you could have canadian followers, don’t you dare scroll past this.
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zombie-baby:

thedisneykiid:

meridiandreams:

thebrightestracingsky:

chopper05:

chicagobowls:


Deafblind Brazilian “watches” World Cup with the help of his friends - Video

THESE are real friends. Absolutely amazing.

Real friends right here

OMG there is hope yet !

THIS. IS. AMAZING!!!!!!!!!!!

awwww

This is the sweetest thing omg
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strongblackbrotha:

Put this on your blog. Our Queens are perfection.
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mocha-spotz:

grrrls-fighting-back:

crooked-boy:

sapphicnymph:

crooked-boy:

This man is a rapist. His name is Steven James and he is not 30 years old. He is 43 years old, a travel nurse, and a pedophile. Do. Not. Trust. Him.

This looks like OKC so if you use it and love around Raleigh, stay safe!!

(This is actually the tinder application which is a lot easier to hide on than OKC)-Steven James is active within the BDSM community and the adult entertainment industry. He targets young, white, single mothers. (my family were not his first victims) As a travel nurse he bounces from hospital to hospital in the tri-state area and is known to frequent Raleigh, Durham, Winston-Salem, Statesville, and Kernersville. He raped me for nine months from the day I turned twelve until my family moved out of his condo in winston salem. When I returned to Chapel Hill he continued to make trips to visit my family and abused me while he was here. In March of 2006 I disclosed about my abuse to my art teacher who contacted department of social services and the police. when Winston Salem authorities were made aware of the case they sent social workers to his home to ask him about the allegations. To avoid losing his nursing privileges he fled to Ohio for a few years until things died down. He is extremely dangerous, armed, and has extensive knowledge of technology (including how to find me should he see this). I am prepared for the backlash associated with this post and its reblogs. I am prepared to deal with the possible shut down of my blog for this post. I am prepared for him to find me. He has taken drastic steps to change his appearance, including what looks like botox and collagen injections. I am wholly positive that I am not mistaken. You do not forget the face of the person who killed what was inside you and you never will. I know that I will never get justice for what he has done and the subsequent events that followed my disclosure, but I hope that with this post he wont be able to ever hurt someone else.Thank you for all of the support i have received. Thank you for your words, your efforts, your reblogs, your thirst for justice.
Be safe, be aware, be critical.
E. 

Signal boost the hell out of this. This man is very dangerous. You could save a life.

Repost everyone
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beardedsexlord:

lovinlivinleavin:

hip-hop-addiction:

nopejustchucktestaa:

hip-hop-addiction:

Old folks talkin bout back in my day

but homie, this is my day

class started two hours ago oh am i late?

no, I already graduated and you can live through anything if Magic made it

They say I talk w/ so much emphasisss

Ooooooo they so sensitive!
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l20music:

50shadesoffoh:

fukkkres:

when ur eating dinner at your friends house

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and their parents start arguing

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and you want to ask for the salt

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but the salt is right in between their upcoming divorce

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😭😭😭

Forever reblog because this shit always cracks me the fuck up! Lol

(via thesoulectedone)

Tumblr Themes Falling asleep on your hand and waking up with it feeling like this

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nicolezai:

canyourollblunts:

nicolezai:

kenyaosuna:

A parents sacrifice.

This killed me

this actually made me tear up

Reblogging again because this is so real.
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c-oralistah:

shrinking-ulzzang:

rabid-logan:

barbie-isalive:

This is very important if you’re ever in a situation similar this pretend that you’re dead don’t scream and @#!*%

my dad told us this if someone shoots up our school
SUPER IMPORTANT
BEST TIP
PLEASE REMEMBER THIS

not even a joke we learned this in Police Explorers and put it on your clothing as well but go quickly because you don’t know where the person is.

i will never not reblog this
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timelordy-teganbreann:

everycage:

savingthedead:

i will continue to reblog this until it gets the notes it deserves because elephants

If your heart isn’t melting it’s because you don’t have one.

it WaVED